Last Monday we went to Logan’s 6 month Neurology check-up. The doctor is fairly confident that Logan may not have Cerebral Palsy, but instead a rare condition called DRD (Dopa-Responsive Dystonia). Unlike Cerebral Palsy, DRD is a treatable condition that , in most cases, is completely reversible with medication. Logan will undergo a spinal tap, MRI, and extensive blood work in the next couple of weeks. I am waiting to hear back from the scheduling department at Cook Children’s Hospital to confirm the date. He will have to be put under anesthesia for the procedures. He may have some discomfort from the lumbar puncture, but he should recover by the next day.
While I am trying not to get my hopes up, I am on bended knees praying that Logan does not have CP as previously diagnosed. I wasn’t sure if I was ready to share this yet as I am trying not to get too focused on what is to come, but rather focus on the Logan I love and accept as he is today. Logan is such a JOY and so full of love and life. Of course, it is hard not to hope and pray that there is a magic pill out there to make his life a little easier. In the end, I decided to share so that I can ask for your prayer during this uncertain time.
Please pray:
Pray that the Neurologist will be able to fit Logan in before the end of the year so we can get some answers soon and not have to pay another surgery deductible next year.
Pray that the testing goes smoothly without complication.
Pray for peace and comfort for me and Cliff while Logan is under anesthesia again.
Pray for steady hands and wisdom for the doctors/nurses working on Logan.
Pray for financial provision.
PRAY FOR A MIRICLE FOR OUR SWEET LOGAN!
Oh Elizabeth, I love your mother's heart that loves and accepts your son as he is, no matter what or how difficult life is. Logan is so blessed to have you and Cliff for parents, and I know you mean it when you say he is a JOY to you. I'm praying with you. Thankful for you, friend.
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